Tomorrow (Friday) and next Monday Adam is going for a hearing test, kidney function test, echo cardiogram, and a dental check-up. On Tuesday he's admitted to UCH in London and Wednesday he starts MIBG therapy. One week confined to the lead lined room with minimal outside contact. Then one week at home. Or rather somewhere that Jake and Jessica are not. There is a danger from the effects of secondary radiation, particularly in Adam's excretions, so for that week we have to live apart though we're not exactly sure what the living arrangements will be yet. Then it's back to UCH for another week of MIBG therapy in isolation.
That's the easy part.
On Oct 13th we transfer straight from UCH to Royal Marsden for High-Dose Chemotherapy with stem cell transplant. That usually means a 2-3 month in-patient stay. The reason for the back-to-back is so that there is only a single transplant involved. We were warned about things snowballing but now it's happening it so feels like everything is starting to unravel and what little control we may have had is being wrested from our grasp. He hasn't recovered properly from surgery yet and has lost a lot of the weight that had taken so long for him to put on. Gone in a fortnight. And soon all that hair that has slowly grown back will be gone too. Not gradually this time, but practically overnight.
There's just so much to think about. To be apprehensive about. Scared about.
We'll see you again in January. Or maybe late December if we're lucky.